Biopartnering Seminar - What Is the Strategic Relevance to Pharma of Websites Such As `Patients Like Me'

Team Photo
Monday, October 31, 2016 - 6:30pm

PatientsLikeMe (PLM) is a website designed to allow patients to connect and share information on conditions, treatments, and clinical trials, in addition to collecting data for health research. The goal of this presentation is to provide insight into the relationship between pharmaceutical companies and PLM to understand how PLM can benefit the companies and patients. Additionally, we analyzed barriers to the success of these partnerships, as well as future trends in this field. Currently, PLM provides anonymous patient data to several pharmaceutical companies, which has many potential uses, including marketing and problem solving. The main barriers for pharmaceutical companies are the regulations surrounding adverse event reporting. We contacted representatives from PLM, pharmaceutical and biotechnology companies, and the U.S. Food and Drug Administration, as well as reviewed relevant publications, to gather information on what data PLM shares, how it is used, potential challenges, how these relationships benefit patients, and future trends. Our primary conclusion is that PLM delivers a strategic advantage to pharmaceutical companies, because they provide aggregate patient data, which can be used for marketing, identifying unmet needs, and product improvement, but is not in the appropriate format to allow for adverse event reporting. With a membership encompassing over 400,000 patients, it would be difficult for companies to access PLM’s individual data. Therefore, we conclude that sharing patient data between PLM and pharmaceutical companies is beneficial for the companies and patients, but we recommend a better system to ensure all adverse events are reported directly to the appropriate regulatory agency.

Presenting Team: Innovatek Biosolutions

Team Members: Jillian Diamond, Alexandra Garbe, Brady Klassen, Cameron Overbeeke, Justin Reimer, Christine Shermet

Date: Tuesday, November 1st, 2016

Location: Instructional Centre, Room 120, UTM Campus

Everyone welcome! Light refreshments will be served at 6pm outside room 120.